care work: dreaming disability justice quotes

Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where theres food at meetings, people work from homeand these arent things we apologize for. The book has been sitting on my to-read shelf since September and I picked it up a few days ago with a "must read over winter break mentality". Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha. Powerful and passionate, Care Work is a crucial and necessary call to arms. " Pginas: 263. Care Work is essentially a mapping ofaccess as radical love, a celebration of the work that sick and disabledqueer/people of color are doing to find each other and to build power andcommunity, and a toolkit for everyone who wants to build radically resilient, sustainablecommunities of liberation where no one is left behind. And what was born is what we call today the Disability Rights Movement. Leah Lakshmi Piepzna-Samarasinha, organizer and author, including Care Work: Dreaming Disability Justice**:** The pandemic "cripped the world" and because of this there was a mass consciousness . And that understanding allowed me to finally write from a disabled space, for and about sick and disabled people, including myself, without feeling like I was writing about boring, private things that no one would understand., Ive noticed tons of abled activists will happily add ableism to the list of stuff theyre against (you know, like that big sign in front of the club in my town that says No racism, sexism, homophobia, transphobia, ableism) or throw around the word disability justice in the list of justices in their manifesto. The kind of book I want everyone to read, but want especially to make sure the right people receive it and for it to not ever be misused because it really is such a gift. Something unprecedented and LOUD. Our embodied experiences guide us toward ongoing justice and liberation. The emergency care model is not sustainable and often falls apart after a few weeks or months when it is believed the injured person will become able-bodied again. Care Work: Dreaming Disability Justice Paperback - Oct. 1 2018 by Leah Lakshmi Piepzna-Samarasinha (Author) 266 ratings See all formats and editions Kindle Edition $11.99 Read with Our Free App Audiobook $0.00 Free with your Audible trial Paperback from $16.53 4 Used from $16.53 12 New from $16.60 Audio CD Oh, how I needed this gift of a book. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there's food at meetings, people work from homeand these aren't things we apologize for. Piepzna-Samarasinha has lived experiences in care webs and helping people through different crises. prob would have appreciated more when this came out 2 years ago. Find many great new & used options and get the best deals for Dreaming of Justice, Waking to Wisdom by Laurence D. Cooper at the best online prices at eBay! In this collection of essays, longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. This book reinvigorated me to fight for a social safety net as well as prioritizing disability justice in my own communities. Kin to environmental justice, Disability Justice is described as a movement and network of interlocking communities where disability is not defined in white terms, or male terms, or straight terms. Care Workis a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Transform into the phoenixes we were all meant to be., I find, that, in general, alliances based on friendship are the only things that last. Making theatre an accessible space is not necessarily taught in a theatrical or performance MFA program. Ableism, coupled with white supremacy, supported by capitalism, underscored by heteropatriarchy, has rendered the vast majority of the world invalid., LEADERSHIP OF THOSE MOST IMPACTED We are led by those who most know these systems. Aurora Levins Morales. "This is where access intimacy gets real!" I yelled, and we all laughed. To learn about our use of cookies and how you can manage your cookie settings, please see our Cookie Policy. However, not everyone recognizes it as such. Poetry and dance are as valuable as a blog post about access hacks - because they're equally important and interdependent.. She is also a long-time member of the disability justice movement, which advocates for the rights of the disabled. Press-published writing on Disability Justice is only beginning to emerge, marking Care Work a crucial kind of historical archive. En stock. Auto-captions will be enabled; please message with further access needs (the sooner the better) and to get zoom info: rebel@disabilityjusticedreaming.org. In Section II, Piepzna-Samarasinha thoroughly explores two central, intersecting themes in Disability Justice: community and accessibility. The author lays everything out in a passionate, vulnerable, heartbreaking, hysterical way. Care work: Dreaming disability justice. Theybegin with an access check in and include time to reflect on/respond to various questions that support your own imaginings and keep us grounded in community needs. Not all disabilities then and now are viewed as real or valid disabilities, and some disabled individuals do not want a caregiver because they do not want to be viewed as incompetent. Intersectional identities may make it harder for people like women or femmes of color to accept care when society pressures them to put themselves last. %PDF-1.6 % It is the way we do the work, which centers disabled-femme-of-color ways of being in the world, where many of us have often worked from our sickbeds, our kid beds, or our too-crazy-to-go-out-today beds. In contrast to highly psychiatric/medicalized accounts of mental illness and simplistic responses to death by suicide (Dont do it; you have something to live for! a book i knew would completely alter my life before i was even close to finishing it. You wanna know how you'll know if you're doing disability justice? This is definitely my #1 top recommendation of the year and one of the best and most important books I've EVER read. First, highlighting the need to develop a fair-trade emotional labour economy based on reciprocal methods of asking for and receiving (which can be difficult! Its the person receiving cares job to figure out what they need and what they can accept, under what circumstances., Everything in my family has taught me that it's safer to be a happy spinster than to try and love anybody. Long marches and conferences continuously asking people to move around is not "justice" -- that is ableism. Long marches and conferences continuously asking people to move around is not "justice" -- that is ableism. Care work: Dreaming disability justice. Narrator: Leah Lakshmi Piepzna-Samarasinha. This work destroys the structure that keeps ableism in tact. Sins Invalid is a fiscally sponsored project of Dancers Group. Building relationships with one another and the DJ Dreaming community. What if this was a rite of passage, a form of emotional labor folks knew ofthis space of helping people transition? Synopsis. An Ongoing, Virtual Care Web: Sick and Disabled Queers. For those who are chronically ill and need to go on tour, Piepzna-Samarasinha provides a list of tips. ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds. That quote, "The only disability in life is a bad attitude," the reason that that's bullshit is because it's just not true, because of the social model of disability. Here, access is more than one ramp to enter a building. (135). For many sick and disabled Black, Indigenous, and brown people under transatlantic enslavement, colonial invasion, and forced labor, there was no such thing as state-funded care. Erickson created a friend-made care collective as a survival strategy to give and receive necessary care, like being transported from her wheelchair to the bathroom or her bed. Must reads (really all of the book, it holds together so beautifully and even scaffolds as a collection): "Care Webs: Experiments in Creating Collective Access; "Protect Your Heart: Femme Leadership and Hyper-Accountability;" "Not Over It, Not Fixed, And Living A Life Worth Living: Towards an Anti-Ableist Vision of Survivorhood.". That quote, "The only disability in life is a bad attitude," the reason that that's bullshit is because it's just not true, because of the social model of disability. I also really enjoyed the histories and stories of the early Disability Justice movement, the thoughts on chronic illness and creativity, and on care webs and mutual aid for disabled people designed by disabled people. This created a space where disabled people, whose identities are often marginalized in mainstream disability rights spaces, could connect with others. Today, much of disability justice is centered on caregiving (i.e., the activity or profession of regularly looking after a child or a sick, elderly, or disabled persondefinition from Google). Reviewed by Cyprus-based writer, Eric Karoulla. Leah Lakshmi Piepzna-Samrasinha is the author of Care Work: Dreaming Disability Justice, Dirty River: A Queer Femme of Color Dreaming Her Way Home (short-listed for the Lambda and Publishing Triangle Awards), Bodymap, Love Cake (Lambda Literary Award winner) and co-editor of The Revolution Starts At Home: Confronting Intimate Violence in . Historically, the disabled were killed under colonialism and capitalism, and this has led to lasting shame within some marginalized communities. Disability justice, because it is built from access needs up, centers "sustainability, slowness, and building for the long haul.". This assignment is intended to encourage you, and require you . Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. ISBN. Care Work Dreaming Disability Justice Leah Lakshmi Piepzna-Samarasinha. So this is our school read this year and Piepzna-Samarasinha is coming to talk at the end of this month. Disability justice centres sick and disabled people of colour, queer and trans disabled folks of colour and everyone who is marginalized in mainstream disability organizing (22). Read honest and unbiased product reviews from our users. With all of our crazy, adaptive-deviced, loving kinship and commitment to each other, we will leave no one behind as we roll, limp, stim, sign, and move in a million ways towards cocreating the decolonial living future. About This Book. At the time of its publication, Exile and Pride was considered a groundbreaking . Care Work is a mapping of access as radical love . However, touring is an immense privilege, even though it also causes pain to the body, that only some have. Lots of things to think about as a care provider, an activist, a queer & trans person, and as someone with at times debilitating mental illnesses. Loree Erickson, the fourth Ethel Louise Armstrong (ELA) Foundation postdoctoral fellowship recipient in the School of Disability Studies, is focused on several areas of research, including collective care initiatives and cultures of undesirability. Photo: Alia Youssef. Only beginning to emerge, marking care Work: Dreaming Disability justice by Lakshmi... 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